I started out arrogant and progressively became more so and angrier and angrier. Something Peter Levine said to me catalyzed the need to start blogging. At first I thought the answers on recovery were out there somewhere and all I needed to do was to find and publish them. I spent years on stroke forums and never really found any answers and what I wanted to ask about nobody knew the answers. It quickly became obvious there are no answers to stroke recovery. The blog morphed into pointing out all the research that currently exists and if we had a strategy to follow up on that research and make it translational we could save trillions of neurons each day and massively reduce disability from stroke.. I have not succeeded in getting any changes to the medical stroke world. But I have just begun to fight.
I started out with 10-20 posts a month, now it is a bad month if I don't post at least 150. I think my best day was 25 posts.
I look at three different ways to influence and change the stroke medical world.
1. Create and be recognized as the thought leader of that great stroke association. Top down.
2. Give the information needed to survivors to push their doctors to create translational research. Bottom up. With 10 million survivors worldwide each year the voices from here could be deafening and promote massive change quickly.
3. Have the stroke doctors influence their organizations (ASA,NSA,WSO) to research and solve all the problems. This is not worth trying anymore, a complete failure for the past 40 years.
The first two are valid and I'm working on both at the same time.
Important posts you should know about:
I look at three different ways to influence and change the stroke medical world.
1. Create and be recognized as the thought leader of that great stroke association. Top down.
2. Give the information needed to survivors to push their doctors to create translational research. Bottom up. With 10 million survivors worldwide each year the voices from here could be deafening and promote massive change quickly.
3. Have the stroke doctors influence their organizations (ASA,NSA,WSO) to research and solve all the problems. This is not worth trying anymore, a complete failure for the past 40 years.
The first two are valid and I'm working on both at the same time.
Important posts you should know about:
Congratulations Dean. I cited your blog in my 2nd edition of My Last Degree: A Therapist Goes Home After a Stroke. You perform am important service for the stroke community.
ReplyDeleteYou may not have succeeded YET in making any changes to the medical stroke world, but you've very much succeeded at getting a whole bunch of people that are willing and wanting to back you. One thing at a time I guess.
ReplyDelete