Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, December 10, 2014

What are you doing to change the stroke medical world?

A question I got this weekend from a good friend. I wasn't able to articulate it very successfully at the bar we were at. To give you an idea of what we are dealing with, here is the first conversation we had with each other years ago, 'I'm Dean, I'm arrogant'. 'I'm Sue, I'm obnoxious'.
At first I was somewhat offended that I'm assigned the task of fixing the f*cking broken stroke medical world rather than the neurologists and stroke hospitals that allowed such a disaster to happen.
So here goes;
1. Report on all the various problems that exist in the stroke world. If you don't even acknowledge there are problems solutions will never occur. Our stroke hospitals and stroke associations have their heads so far up their asses they never see anything wrong with the rosy stroke world they see. Their world only sees that if we could have everyone in the world trained in F.A.S.T. and delivered to a stroke hospital quickly then everything will be hunky-dory and those survivors will praise those efforts. What a load of bullshit. Everyone associated with these should be fired for incompetence.

2. Report and lay down an evidence base of existing research that just needs further validation and translation into stroke protocols. My blog is doing a good job of that. I should never have had to do this. Every hospital should have someone assigned just to update stroke protocols based on published research. That alone is why every hospital president and stroke department head should be fired.

3. Create a strategic plan that lays down a step by step process to address each of the problems in stroke.

4. Engage every survivor to scream at their doctors and hospitals as to why they haven't fixed anything from the first two points. 10 million persons a year can get very noisy.

5. Either start a survivor focused stroke association or take over an existing one.

6. Create a research foundation that  sponsors research to follow that strategic plan and solve those problems in stroke.

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