Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, March 30, 2015

National Stroke Foundation appoints new Consumer Council members - Australia

If you know these members let them know what  needs to be done for stroke survivors.
I would say the first thing is to create a strategy to solve all the problems in stroke. With no strategy everyone is just flailing around and nothing useful gets done.
http://frame.bloglovin.com/?post=4260654600&group=0&frame_type=a&context=&context_ids=&blog=8336069&frame=1&click=0&user=0
A dedicated carer and three inspirational stroke survivors are set to bring a fresh new voice to stroke by joining the National Stroke Foundation’s Consumer Council.
Full-time carer Julie Collins, and stroke survivors Rebecca Schmidt, Richard Haley, and Jennifer Muller have all joined the ten member Council which advises the Foundation of the needs and priorities of stroke survivors and their carers.
National Stroke Foundation Chief Executive Officer Dr Erin Lalor said the appointments would help ensure the Foundation continued to best represent Australians impacted by stroke.
“The Consumer Council is a crucial part of the National Stroke Foundation, providing us with a greater insight into what it’s like to be a stroke survivor and a carer in Australia,” Dr Lalor said.
“Despite our new members having very different experiences and backgrounds, they have all seen first-hand the truly devastating impact of stroke.”
Julie Collins life changed dramatically when she suddenly became a full-time carer after her husband Ross’ stroke in 2012. Julie has had to put her teaching career on hold to care for Ross and now uses her experience to help others by leading a carer support group in her local area.
Rebecca Schmidt suffered a debilitating stroke when she was just 26, which left her almost completely paralysed. After her harrowing experience, Rebecca is now a strong voice for the fair treatment of stroke survivors in her local community.
Richard Haley is considered by many to be lucky to be alive, after surviving a series of strokes caused by an underlying heart condition. Richard received cutting edge treatment and excellent rehabilitation care, however he is keenly aware many stroke patients are not as fortunate, and has become a passionate advocate for better quality stroke care.
Jennifer Muller has worked as a passionate public health professional for more than twenty years. This passion became personal when Jennifer suffered a major stroke in 2006. After experiencing first-hand what it’s like to be a stroke survivor she has drawn on her own experience to help inform public health policy.
“I congratulate Julie, Rebecca, Richard and Jennifer on their appointments and look forward to working with them and their fellow Consumer Council members to further the Foundation’s efforts to reduce the devastating impact of stroke in Australia,’’ Dr Lalor said.

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