Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, May 18, 2015

21st Century Cures - US Energy and Commerce Committee

You can see from responses to this that stroke does not seem to be involved at all. What the hell are the ASA and NSA good for if they don't represent the needs of survivors for stroke research?
http://energycommerce.house.gov/cures
In the 393 page discussion document, not one word on stroke;
http://energycommerce.house.gov/sites/republicans.energycommerce.house.gov/files/114/Analysis/Cures/20150127-Cures-Discussion-Document.pdf
The responses are here; still nothing on stroke, ASA and NSA still MIA
http://energycommerce.house.gov/sites/republicans.energycommerce.house.gov/files/114/Analysis/Cures/20150316CuresRespondents.pdf

I guess we will have to wait for the 22nd century, you better hope your grandchildren live than long.
Or you find some billionaire friends willing to fund stroke research on their own.
“Through the exceptional leadership of Rep. Upton and Rep. DeGette, the tireless work of the Energy and Commerce Committee staff, and a robust dialogue with researches, FDA, NIH, advocates and industry, this legislative draft is taking significant steps toward creating a strong foundation to spur innovation.” 
“The latest draft reflects the tremendous commitment both of you have to developing this initiative in a bipartisan manner. You, your colleagues and staff members should be applauded for the amount of work expended over the past few months to refine and improve the concepts included in the discussion draft and produce this comprehensive draft legislation.” 
“We commend you for this important effort to improve the delivery of health care to patients.”
United for Medical Research, which includes dozens of coalition partners including patient groups, universities, and other industry leaders listed online here:
“We are grateful for the leadership of Chairman Fred Upton (R-MI) and Representative Diana DeGette (D-CO) and the tremendous effort that they and the other members of the House Energy and Commerce Committee have committed to the process of developing meaningful legislation on NIH funding and policy.”
“This comprehensive, thoughtful and bipartisan initiative to examine and update our national research and development infrastructure comes at such an important time to our community as life-altering new therapies for Duchenne are now closer than ever before.” 
“Thank you for your continued support of pediatric medical research…”
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