Deans' stroke musings: Feeling grateful for you today - National Stroke Association email

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, November 23, 2015

Feeling grateful for you today - National Stroke Association email

I'm not grateful for the NSA. Reasoning below in red. And Matt Lopez is even a stroke survivor and should know better.
http://support.stroke.org/site/R?i=-dRLK_3QIKAU0JYeLg_AWA

Dear dean,

As 2015 comes to a close, I am excited about the lives that have been saved and impacted by the work of National Stroke Association. This year, we launched Stroke Recover Navigator—a game-changer for anyone who has experienced the life-altering effects of a stroke. This impactful program helps stroke survivors in those confusing and frightening first few months when they have left the hospital and are trying to make sense of their new life. Then, this summer, Come Back Strong was unveiled. With the launch of the Come Back Strong movement, our goal is to provide stroke survivors with hope after stroke so they can begin their journey to recovery and Come Back Strong. Have you gotten involved with the Come Back Strong movement yet? This Come Back Strong initiative wouldn't be necessary if you would create protocols that get survivors back to 100% recovery. More important if you solved and prevented the neuronal cascade of death. You aren't even solving the problems out there. You're trying to ameliorate the aftereffects. Damn it all, use some of your fucking neurons and understand cause and effect.

This year, I am so grateful for your support.

I am giving thanks this year to you. We have a passion for increasing awareness of life-saving stroke information, improving quality of life for stroke survivors and caregivers, and impacting survivor empowerment. Because of you, this important work will continue.

The next year is going to be exciting. We look forward to sharing with you more new resources and programs that continue to reduce the incidence of stroke and improve your quality of life. You have told us what your greatest needs are(Really, I haven't been contacted) and we look forward to continuing to meet those needs.

Thank you for trusting us to be the voice of the stroke community. I don't trust you because you have no outreach to survivors. Look at what a great stroke association would be doing for outreach.

With thanks,