Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, April 28, 2016

National Stroke Association - Where the money goes

This in a nutshell points out the whole problem with our stroke associations. Awareness NOT finding solutions to all the problems in stroke. This is so simple to solve;
1. Create and follow a stroke strategy to solve stroke problems. BHAGs (Big Hairy Audacious Goals)  Like repeatable neuroplasticity, repeatable neurogenesis, fatigue, spasticity, aphasia. And since we have no National Stroke Plan or strategy nothing will get done in stroke from the NSA that actually helps survivors.
2. Put out RFPs(Request for Proposals) to researchers to solve those problems.
3. Apply for grant money to fund those research projects.
4. Broadcast the success stories to generate enthusiasm and more foundations that want to get on a successful stroke strategy train. Hit the tipping point for stroke so each stroke success is met with breathless anticipation and media stories.
http://www.stroke.org/

Where the Money Goes


Total Expenses: $3,339,663

  • Administrative: $313,110 - 9%
  • Fundraising: $515,266 - 15%
  • Stroke Education: $2,511,287 - 74%

pie chart

2 comments:

  1. This post left me wondering if $3.3 million is enough to do anything but provide stroke education. So far I found this to compare to a good foundation:
    https://www.michaeljfox.org/foundation/where-does-your-money-go.php?navid=footer-impact
    Since 2000, The Michael J. Fox Foundation has funded more than $450 million to speed a cure for Parkinson's disease.

    NSA is not even close!

    There are way more people affected by stroke than Parkinson

    ReplyDelete
    Replies
    1. Someday the NSA big shots will talk to me but until then I will keep telling them they are wrong in everything they do.

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