Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, April 21, 2016

Physicians failing to talk to stroke patients about end-of-life treatment preferences

How would your doctor have any clue about how close you are to death with no objective information on the dead and damaged areas in stroke?
My doctor told me I had a massive stroke but that had to be pulled out of his ass, he had no concrete information to base that upon. Yeah, my left side didn't work at all but I could hold lucid conversations immediately.  I'd have to say most of my damage probably occurred during the first week as the neuronal cascade of death killed off a huge chunk of my brain.
http://www.news-medical.net/news/20160414/Physicians-failing-to-talk-to-stroke-patients-about-end-of-life-treatment-preferences.aspx

By Lucy Piper
US research suggests that physician-patient discussion about limitations on life-sustaining interventions following ischaemic stroke is low, poorly documented and often left too late.
Among 198 patients, aged 80 years on average, who died within 30 days of admission to hospital due to stroke, less than 40% had discussions with their physicians about limitations on life-sustaining interventions documented during the index hospitalisation.
Even among patients who died while in hospital or were discharged to hospice, only 50% had documented discussions about end-of-life treatment.
This was despite 47% of patients documenting at or within 48 hours of admission their desire to forgo at least one life-sustaining intervention.
"This suggests that there is an opportunity to improve patient-physician communication, and thus the quality of palliative care in stroke, in the early poststroke period", say lead researcher Maisha Robinson (Mayo Clinic, Jacksonville, Florida, USA) and colleagues.
Indeed, their findings showed that for most patients discussions occurred just 5 days before death and although unable to discern the reasons for this lateness, the researchers propose it could be due to worsening or lack of improvement of the patient's clinical condition or due to episodes of poor quality of care leading to clinical deterioration.
Physician communication was a significant 56% less likely to be documented for patients with mild to severe stokes than for those with very severe strokes, particularly regarding preferences for cardiopulmonary resuscitation.
"It is plausible that physicians are more comfortable initiating discussions about end-of-life care decisions in catastrophic situations or that these discussions more often lead to documented decisions to withhold life-sustaining interventions with severe strokes relative to milder ones, or both", suggests the team in Neurology.
Ying Xian (Duke University Medical Center, Durham, North Carolina, USA) and Winston Chiong (University of California, San Francisco, USA) stress in a related editorial that the highly preference-sensitive nature of decisions on life-sustaining therapy after acute ischaemic stroke and their ability to "profoundly influence consequent mortality" make them "essential" to ensure high-quality care.
They conclude: "As has been noted elsewhere, such failures to incorporate patient preferences are themselves preventable medical errors, and these errors are particularly consequential in the setting of ischemic stroke."
"Future initiatives to improve safety and reduce preventable errors in stroke care should include efforts to identify contributing factors associated with the lack of communication, develop interventions to promote healthy dialog among patients, their families, and the health care team, and ultimately improve patient-centered care at the end of life for stroke patients." (Nothing on objectively determining the damage, so guessing is involved.)

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