Deans' stroke musings: Take Action on the SYNC Act!

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, April 25, 2016

Take Action on the SYNC Act! - Stroke Advocacy Network

Wow, just wow, What a small bore action. Pure laziness, Must be too hard to take on a big challenge, Like solving neuroplasticity or neurogenesis or fatigue or spasticity or aphasia or creating a National Stroke Plan. There are plenty of BHAGs(Big Hairy Audacious Goals) out there. But what the hell, this organization is not run for survivors anyway.
http://support.stroke.org/site/R?i=ikWwR77-6Bg0J-ystwd1sA
Dear SAN member,
We need your help. Recently, legislators in the House introduced the SYNC Act. The SYNC Act would expand research and testing of care models that will improve medication adherence. One of these models is prescription synchronization. Prescription synchronization allows patients with chronic conditions, such as stroke, to have multiple medications refilled at the same time.
The SYNC Act would greatly benefit patients who take multiple medications by making it easier and less time consuming to get refills. It also would help the caregivers, family members, and loved ones whom stroke survivors rely on for care and support.
Can you take five minutes to make a difference for stroke survivors and their families? Ask your members of Congress to support the SYNC Act. We have already provided everything you need, including a draft letter you can personalize. Just put in your address so we know which members of Congress your letter should go to and that’s it! Add your voice to the conversation to help ensure this important legislation gets passed.

Thank you,